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July 11, 2012

Vol. 112, No. 15

Perspective

A citizen of the republic of baseball

By George F. Will *68
Published in the July 11, 2012, issue


Baseball fan Jon Will, pictured with his father, gives the Washington Nationals’ lineup card to umpires on Opening Day in 2010.
PHOTO: COURTESY OF THE WILL FAMILY
Baseball fan Jon Will, pictured with his father, gives the Washington Nationals’ lineup card to umpires on Opening Day in 2010.
George F. Will *68
PHOTO: SIGRID ESTRADA/COURTESY GEORGE WILL *68
George F. Will *68

Author, newspaper columnist, and television commentator George F. Will *68 won the Pulitzer Prize for commentary in 1977.

When Jonathan Frederick Will was born 40 years ago — on May 4, 1972, his father’s 31st birthday — the life expectancy for people with Down ­syndrome was about 20 years. That is understandable.

The day after Jon was born, a doctor told Jon’s parents that the first question for them was whether they intended to take Jon home from the hospital. Nonplussed, they said they thought that is what parents do with newborns. Not doing so was, however, still considered an acceptable choice for parents who might prefer to institutionalize or put up for adoption children thought to have necessarily bleak futures. Whether warehoused or just allowed to languish from lack of stimulation and attention, people with Down syndrome, not given early and continuing interventions, were generally thought to be incapable of living well, and hence usually did not live as long as they could have. 

Down syndrome is a congenital condition resulting from a chromosomal defect — an extra 21st chromosome. It causes varying degrees of mental retardation and some physical abnormalities, including small stature, a single crease across the center of the palms, flatness of the back of the head, a configuration of the tongue that impedes articulation, and a slight upward slant of the eyes. In 1972, people with Down syndrome were still commonly called Mongoloids. 

Now they are called American citizens, about 400,000 of them, and their life expectancy is 60. Much has improved. There has, however, been moral regression as well. 

Jon was born just 19 years after James Watson and Francis Crick published their discoveries concerning the structure of DNA, discoveries that would enhance understanding of the structure of Jon, whose every cell is imprinted with Down syndrome. Jon was born just as prenatal genetic testing, which can detect Down syndrome, was becoming common. And Jon was born eight months before Roe v. Wade inaugurated this era of the casual destruction of pre-born babies. 

This era has coincided, not just coincidentally, with the full, garish flowering of the baby boomers’ vast sense of entitlement, which encompasses an entitlement to exemption from nature’s mishaps, and to a perfect baby. So today science enables what the ethos ratifies, the choice of killing children with Down syndrome before birth. That is what happens to 90 percent of those whose parents receive a Down syndrome diagnosis through prenatal testing.

Which is unfortunate, and not just for them. Judging by Jon, the world would be improved by more people with Down syndrome, who are quite nice, as humans go. It is said we are all born brave, trusting, and greedy, and remain greedy. People with Down syndrome must remain brave in order to navigate society’s complexities. They have no choice but to be trusting because, with limited understanding, and limited abilities to communicate misunderstanding, they, like Blanche DuBois in A Streetcar Named Desire, always depend on the kindness of strangers. Judging by Jon’s experience, they almost always receive it.

Two things that have enhanced Jon’s life are the Washington subway system, which opened in 1976, and the Washington Nationals baseball team, which arrived in 2005. He navigates the subway expertly, riding it to the Nationals ballpark, where he enters the clubhouse a few hours before game time and does a chore or two. The players, who have climbed to the pinnacle of a steep athletic pyramid, know that although hard work got them there, they have extraordinary aptitudes because they are winners of life’s lottery. Major leaguers, all of whom understand what it is to be gifted, have been uniformly and extraordinarily welcoming to Jon, who is not.

Except he is, in a way. He has the gift of serenity, in this sense: 

The eldest of four siblings, he has seen two brothers and a sister surpass him in size and acquire cars and college educations. He, however, with an underdeveloped entitlement mentality, has been equable about life’s sometimes-careless allocation of equity. Perhaps this is partly because, given the nature of Down syndrome, neither he nor his parents have any tormenting sense of what might have been. Down syndrome did not alter the trajectory of his life; Jon was Jon from conception on. 

This year Jon will spend his birthday where every year he spends 81 spring, summer, and autumn days and evenings, at Nationals Park, in his seat behind the home team’s dugout. The Phillies will be in town, and Jon will be wishing them ruination, just another man, beer in hand, among equals in the republic of baseball.

This column originally was published in the May 3, 2012, print edition of The Washington Post.

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3 Responses to Perspective

Andrew J. Lazarus '79 Says:

2012-07-18 10:49:07

I wonder if the additional strain of raising a special-needs child is one reason that George Will's first marriage - into which Jon Will was born - ended in scandal, with the elder Will's belongings on the front lawn. How dare he scold those who terminate a pregnancy instead of a marriage? (Oh, wait, Conservative Family Values guy - never mind.)

Brian Warren '82 Says:

2012-07-30 10:10:23

At risk of being boorish by critiquing Mr. Will’s commentary on his son, my only defense would be that he opened the topic by making his son the fodder of a not-so-subtle political message. I would never criticize a decision to have and raise a child with Down syndrome. I would, however, point out that not everyone is equally equipped, by luck or effort, to support the needs of such a child. And, then what? Mr. Will says that, “Two things that have enhanced Jon’s life are the Washington subway system, which opened in 1976, and the Washington Nationals baseball team, which arrived in 2005.” Mr. Will’s conservative cohort, in today’s radicalized, tea party manifestation, would rabidly oppose any federal funding for the construction of said subway system. It is ironic that one of the two things that most improved Jon’s quality of life was a “liberal” infrastructure spending program, the National Capital Transportation Act of 1965. And even more ironic that the Washington Metropolitan Transit Authority was partially bailed out in 2009 by “two new series of municipal bonds bringing its total outstanding bonds to $390.9 million, (including) $55 million of Build America Bonds issued in 2009 under the American Recovery and Reinvestment Act of 2009 that are partially subsidized by the federal government.” (http://www.wmata.com/about_metro/news/PressReleaseDetail.cfm?ReleaseID=2345 ) Regarding the other thing that improved Jon’s life, Major League Baseball only allowed the defunct Montreal Expos to be reborn as the Washington Nationals after the Washington D.C. city council agreed to $611 million of taxpayer support for the construction of a new stadium. In short, Mr. Will’s story dramatically underscores the fact that taxpayer support for government-funded infrastructure has a profoundly positive impact in enabling all of our citizens, regardless of ability or wealth, to participate in the blessings of our American society. One can only wonder how Mr. Will can continue to offer intellectual shelter to a political mentality that would have told him and his son that freedom means never paying a dime in taxes to help your fellow citizens, including his own son.

Brigid Kowalczyk Says:

2012-08-28 09:26:22

I think it is challenges that make us who we are. Perhaps George Will went through a rough patch in his first marriage, but he didn't stay there. Perhaps that would be the case for anyone who accepts the challenge to raise a special-needs child.
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